Aging in Place with Dementia: Proceedings of a Workshop (2024)
Chapter: Appendix A: Workshop Agenda
Appendix A
Workshop Agenda
WORKSHOP ON AGING IN PLACE WITH DEMENTIA
Public Webcast
Workshop Goals: Discuss the state of knowledge and identify conceptual approaches to guide research on aging in place for people living with dementia in the United States. The workshop will emphasize community- and neighborhood-level factors that enable aging in place.
SEPTEMBER 13, 2023
| 12:30–1:00pm | Welcome and introductory remarks from the workshop planning committee and NIA |
| Emily Agree, Johns Hopkins University, workshop planning committee chair | |
| Amy Kelley, National Institute on Aging | |
| Elena Fazio, National Institute on Aging |
SESSION 1—FRAMEWORKS FOR AGING IN PLACE WITH DEMENTIA
In this session speakers are being asked to explore how existing frameworks for aging in place can be adapted to incorporate people living with dementia. (Each presenter will have up to 20 minutes for their remarks.)
Guiding questions: How well do our models of the neighborhood and community factors which facilitate aging in place fit people living with dementia? What additional factors need to be taken into account? Are there unique challenges that differ from those of people with physical disabilities or chronic disease? How do structural sources of disadvantage affect people living with dementia in these communities?
| 1:00–2:30 | Moderator: Jennifer Manly, Columbia University, workshop planning committee member |
| Presenters: | |
| Frank Oswald, Goethe University | |
| AJ Adkins-Jackson, Columbia University | |
| Emily Greenfield, Rutgers University | |
| Q&A (30 minutes) | |
| 2:30–2:45 | Break |
SESSION 2—COMMUNITY-LEVEL BUILT ENVIRONMENT AND INFRASTRUCTURE
In this session speakers will discuss how aspects of the built environment and community infrastructure affect aging in place with dementia. (Each presenter will have up to 20 minutes for their remarks.)
Guiding questions: What aspects of infrastructure affect the ability of people living with dementia to age in place? Can public spaces, transportation systems, and architecture be made more friendly for people living with dementia? Are there differences in urban and rural communities in the features that are most important to people living with dementia?
| 2:45–4:15 | Moderator: Wendy Rogers, University of Illinois Urbana-Champaign, workshop planning committee member |
| Presenters: | |
| Jessica Finlay, University of Colorado | |
| Emmy Betz, University of Colorado | |
| Terri Lewinson, Dartmouth College | |
| Q&A (30 minutes) | |
| 4:15 | Adjournment |
SEPTEMBER 14, 2023
| 12:30–12:45 | Virtual participants gather; brief introduction and reminder of workshop goals |
SESSION 3—EVALUATING SUCCESSFUL AGING IN PLACE WITH DEMENTIA
In this session speakers are being asked to discuss how we can measure and evaluate aging in place with dementia. (Each presenter will have up to 20 minutes for their remarks.)
Guiding Questions: To what extent should the goals of programs that support aging in place with dementia be targeted to keep people in their own homes versus in a community or social environment? Can aging in place for people living with dementia be evaluated in terms of improvements in quality of life, deferring transitions to facility-based care, or other metrics?
| 12:45–2:15 | Moderator: Jennifer Ailshire, University of Southern California, workshop planning committee member |
| Presenters: | |
| Laura Gitlin, Drexel University | |
| Jennifer Molinsky, Harvard University Joint Center for Housing Studies | |
| Louise Lafortune, Cambridge University | |
| Q&A (30 minutes) | |
| 2:15–2:30 | Break |
SESSION 4—SOCIAL SERVICES AND OTHER SUPPORT ENVIRONMENTS
This session will focus on the integration of services and other community resources. (Each presenter will have up to 20 minutes for their remarks.)
Guiding questions: How can local health and social service systems be incorporated into community level efforts to support people living with dementia, help them to stay in their own homes longer, and minimize adverse consequences? What is the role of physicians and other health care providers to improve quality of life and reduce hospitalization and institutionalization?
| 2:30–4:00 | Moderator: Amy Kind, University of Wisconsin–Madison, workshop planning committee member |
| Presenters: | |
| Manish Shah, University of Wisconsin–Madison | |
| Chanee Fabius, Johns Hopkins University | |
| Laura Trejo, Los Angeles County Aging and Disabilities Department | |
| Q&A (30 minutes) | |
| 4:00 | Adjournment |
SEPTEMBER 15, 2023
| 12:30–12:45 | Virtual participants gather; brief introduction and reminder of workshop goals |
SESSION 5—SOCIAL ISOLATION AND ENGAGEMENT
This session will explore the consequences of social isolation and engagement for aging in place with dementia. (Each presenter will have up to 20 minutes for their remarks.)
Guiding Questions: Older people living with dementia are at greater risk than others for social isolation and having little or no support can have serious consequences for their ability to remain in the community over time. How are people living with dementia vulnerable to risks of isolation? What individual and community level factors improve or worsen the consequences of isolation for people living with dementia? What interventions are available that might be useful to support those without family or friends available?
| 12:45–2:15 | Moderator: William Vega, Florida International University, workshop planning committee member |
| Presenters: | |
| Thomas Cudjoe, Johns Hopkins University | |
| Raksha Mudar, University of Illinois Urbana-Champaign | |
| Andrew Cohen, Yale University | |
| Q&A (30 minutes) | |
| 2:15–2:30 | Break |
SESSION 6—RESEARCH IMPLICATIONS OF COMMUNITY-BASED INTERVENTIONS AND POLICIES
Panel discussion of future research that is needed to develop scalable interventions and new policies at the community level for aging in place for people living with dementia. (Each presenter will have up to 15 minutes for their remarks.)
Guiding questions: What research is needed to identify the challenges to implementation in “real world” programs? Where is there room for innovations in delivery of services, organization of infrastructure, and supportive services? How can interventions be developed to be sustainable in diverse community settings?
| 2:30–4:00 | Moderator: Sarah Szanton, Johns Hopkins University, workshop planning committee member |
| Presenters: | |
| Regina Shih, Emory University | |
| Bruce Finke, Indian Health Service | |
| Erin Long, Administration for Community Living | |
| Gina Green-Harris, Wisconsin Alzheimer’s Institute Milwaukee Office | |
| Q&A (30 minutes) | |
| 4:00 | Adjournment |
