Addressing Health Disparities in Central Nervous System Disorders: A Workshop Series

Addressing Health Disparities in Central Nervous System Disorders: Virtual Workshop #3

April 25, 2023

11:00 AM - 1:00 PM (EDT)

Past

Materials

About

Workshop Series Details

Part 1 – April 13, 2023, 11:00a.m. – 1:00p.m. EDT
Part 2 – April 18, 2023, 12:00a.m. – 2:00p.m. EDT
Part 3 – April 25, 2023, 11:00a.m. – 1:00p.m. EDT

About this Workshop: Virtual Workshop #3 - Moving Forward to Drive Transformative Change

To reduce health disparities in CNS disorders, innovative approaches and solutions are needed to address structural constraints. This virtual workshop explored the role of different stakeholders to move the field forward in an ethical manner to increase the diversity of the neuroscience workforce, advance community partnerships, and facilitate multidisciplinary collaborations to ultimately drive transformative and sustainable change in research and clinical care.

About this Workshop Series

This public workshop series brought together experts and key stakeholders from academia, industry, government, philanthropic foundations, and disease-focused non-profit organizations to examine health disparities in central nervous system (CNS) disorders; further understand the underlying causal factors when race and ethnicity are used as proxy measures; and discuss open research questions, policy implications, and opportunities to move the field forward in an ethical manner.

Invited presentations and discussions:

Reviewed the current state of knowledge regarding health disparities in CNS disorders and the evidence needed to address gaps in understanding, including in areas that are undervalued/neglected as a reflection of the current makeup of the neuroscience research workforce.
Explored available evidence on the impact of psychosocial and environmental factors (e.g., exposure to environmental toxins, racism, and discrimination) on CNS disorders and how they contribute to health disparities.
Considered models of research approaches and other models designed to enable better inclusion of underrepresented and excluded populations throughout the entire research and development trajectory for CNS disorders to generate more robust, generalizable, and equitable findings; highlight case studies and available evidence of their effectiveness.
Explored potential multidisciplinary collaborations—for example among basic mechanistic science, cognitive neuropsychology, epidemiology, and technology development—to further elucidate these topics and rigorously combine methods in their respective fields.

These virtual workshops will engage a wide range of perspectives to include persons with lived experience; individuals from community advocacy organizations and faith-based groups engaged in research; scientists in academia, industry, and the non-profit sector; ethicists; research funders and policymakers; and other interested stakeholders.

The planning committee will develop the agenda for the workshops, select and invite speakers and discussants, and moderate the discussions. Following each workshop, a proceedings-in-brief capturing the presentations and discussions at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.

To view questions submitted online throughout the event, please click here.

Contact

Eva Childers

(202) 334-1442
echilders@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Addressing Health Disparities in Central Nervous System Disorders: Virtual Workshop #1

April 13, 2023

11:00 AM - 1:00 PM (EDT)

Past

Materials

About

Workshop Series Details

Part 1 – April 13, 2023, 11:00a.m. – 1:00p.m. EDT
Part 2 – April 18, 2023, 12:00a.m. – 2:00p.m. EDT
Part 3 – April 25, 2023, 11:00a.m. – 1:00p.m. EDT

About this Workshop: Virtual Workshop #1 - Structural and Social Determinants of Risk

Structural and psychosocial mechanisms are all contributors to health disparities that can impact the risk and outcomes of CNS disorders and biological aging. This virtual workshop will explore the mechanisms and impact of environmental factors and community engagement on CNS disorders as well as evidence-based resources, opportunities, and interventions to reduce health and safety risks.

About this Workshop Series

This public workshop series brought together experts and key stakeholders from academia, industry, government, philanthropic foundations, and disease-focused non-profit organizations to examine health disparities in central nervous system (CNS) disorders; further understand the underlying causal factors when race and ethnicity are used as proxy measures; and discuss open research questions, policy implications, and opportunities to move the field forward in an ethical manner.

Invited presentations and discussions:

Reviewed the current state of knowledge regarding health disparities in CNS disorders and the evidence needed to address gaps in understanding, including in areas that are undervalued/neglected as a reflection of the current makeup of the neuroscience research workforce.
Explored available evidence on the impact of psychosocial and environmental factors (e.g., exposure to environmental toxins, racism, and discrimination) on CNS disorders and how they contribute to health disparities.
Considered models of research approaches and other models designed to enable better inclusion of underrepresented and excluded populations throughout the entire research and development trajectory for CNS disorders to generate more robust, generalizable, and equitable findings; highlight case studies and available evidence of their effectiveness.
Explored potential multidisciplinary collaborations—for example among basic mechanistic science, cognitive neuropsychology, epidemiology, and technology development—to further elucidate these topics and rigorously combine methods in their respective fields.

These virtual workshops engaged a wide range of perspectives to include persons with lived experience; individuals from community advocacy organizations and faith-based groups engaged in research; scientists in academia, industry, and the non-profit sector; ethicists; research funders and policymakers; and other interested stakeholders.

The planning committee developed the agenda for the workshops, select and invite speakers and discussants, and moderate the discussions. Following each workshop, a proceedings-in-brief capturing the presentations and discussions at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.

To view questions submitted online throughout the event, please click here.

Contact

Eva Childers

(202) 334-1442
echilders@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

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Addressing Health Disparities in Central Nervous System Disorders: A Workshop Series

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Addressing Health Disparities in Central Nervous System Disorders: Virtual Workshop #3

Addressing Health Disparities in Central Nervous System Disorders: Virtual Workshop #2

Addressing Health Disparities in Central Nervous System Disorders: Virtual Workshop #1