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Addressing Health Disparities in Central Nervous System Disorders: A Workshop Series

Completed

Racism, discrimination, and social determinants of health have contributed to clear disparities in health and health outcomes, particularly in central nervous system (CNS) disorders. Recognizing the need to better understand and address health disparities in CNS disorders, the National Academies' Forum on Neuroscience and Nervous System Disorders hosted a workshop series in April 2023 that convened a broad range of experts and stakeholders to review current knowledge regarding health disparities in CNS disorders, explore the impact of psychosocial and environmental factors, consider models of inclusive research approaches, and identify potential cross-disciplinary collaborations needed to further elucidate these topics.

Description

A planning committee of the National Academies of Sciences, Engineering, and Medicine will organize and conduct a series of approximately three virtual public workshops to examine health disparities in central nervous system (CNS) disorders; further understand the underlying causal factors when race and ethnicity are used as proxy measures; and discuss open research questions, policy implications, and opportunities to move the field forward in an ethical matter.

The workshop series will feature invited presentations and discussions that will:

  • Review the current state of knowledge regarding health disparities in CNS disorders and the evidence needed to address gaps in understanding, including in areas that are undervalued/neglected as a reflection of the current makeup of the neuroscience research workforce.
  • Explore available evidence on the impact of psychosocial and environmental factors (e.g., exposure to environmental toxins, racism, and discrimination) on CNS disorders and how they contribute to health disparities.
  • Consider models of research approaches and other models designed to enable better inclusion of underrepresented and excluded populations throughout the entire research and development trajectory for CNS disorders to generate more robust, generalizable, and equitable findings; highlight case studies and available evidence of their effectiveness.
  • Explore potential multidisciplinary collaborations - for example among basic mechanistic science, cognitive neuropsychology, epidemiology, and technology development - to further elucidate these topics and rigorously combine methods in their respective fields.

These virtual workshops will engage a wide range of perspectives to include persons with lived experience; individuals from community advocacy organizations and faith-based groups engaged in research; scientists in academia, industry, and the non-profit sector; ethicists; research funders and policymakers; and other interested stakeholders.

The planning committee will develop the agenda for the workshops, select and invite speakers and discussants, and moderate the discussions. Following each workshop, a proceedings-in-brief capturing the presentations and discussions at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.

Contributors

Committee

Co-Chair

Co-Chair

Member

Member

Member

Member

Member

Member

Member

Member

Member

Member

Sponsors

Alzheimer's Association

Cerevel Therapeutics

Cohen Veterans Bioscience

Department of Veterans Affairs

Eisai

Food and Drug Administration

Foundation for the National Institutes of Health

Gatsby Charitable Foundation

Janssen Research & Development, LLC

Karuna Therapeutics

Lundbeck Research USA, Inc.

Michael J. Fox Foundation for Parkinson's Research

National Center for Complementary and Integrative Health

National Eye Institute

National Institute of Environmental Health Sciences

National Institute of Mental Health

National Institute of Neurological Disorders and Stroke

National Institute on Aging

National Institute on Alcohol Abuse and Alcoholism

National Institute on Drug Abuse

National Institutes of Health BRAIN Initiative

National Multiple Sclerosis Society

National Science Foundation

One Mind

Simons Foundation

Takeda

Wellcome Trust

Staff

Sheena Posey Norris

Lead

Eden Neleman

Eva Childers

Kimberly Ogun

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