Enabling 21st Century Applications for Cancer Surveillance Through Enhanced Registries and Beyond: Proceedings of a Workshop (2025)

Chapter: Appendix B: Workshop Agenda

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Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2025. Enabling 21st Century Applications for Cancer Surveillance Through Enhanced Registries and Beyond: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/28676.
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Appendix B

Workshop Agenda

JULY 29, 2024

8:30 am Welcome and Workshop Overview
Planning Committee Co-Chairs:
  • Lisa Richardson, Centers for Disease Control and Prevention
  • Robin Yabroff, American Cancer Society
8:45 am Session 1: Overview of the Current State of Cancer Surveillance
Co-Moderators:
  • Lisa Richardson, Centers for Disease Control and Prevention
  • Nadia Howlader, National Cancer Institute
The Importance of Cancer Surveillance for Improving Patient Care
  • Kelly Shanahan, Metavivor
Charting the Course: The Evolution of Cancer Surveillance in the United States and Vision for the Future
  • Douglas Lowy, National Cancer Institute
Page 70 Cite
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2025. Enabling 21st Century Applications for Cancer Surveillance Through Enhanced Registries and Beyond: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/28676.
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Opportunities and Challenges to Improve Cancer Surveillance and Registries

Perspective from the National Cancer Institute’s Surveillance, Epidemiology, and End Results Program

  • Lynne Penberthy, National Cancer Institute

Perspective from the Centers for Disease Control and Prevention

  • Vicki Benard, Centers for Disease Control and Prevention

Perspective from the National Cancer Database

  • Bryan Palis, American College of Surgeons (Virtual)
  • Lawrence Shulman, University of Pennsylvania
Perspective from the North American Association of Central Cancer Registries
  • Betsy A. Kohler, North American Association of Central Cancer Registries
Panel Discussion
10:30 am Break
10:45 am Session 2: Lessons Learned from U.S. and International Cancer Surveillance Efforts
Co-Moderators:
  • Scarlett Lin Gomez, University of California, San Francisco
  • Larissa Nekhlyudov, Brigham & Women’s Hospital, Dana-Farber Cancer Institute, and Harvard Medical School
Lessons Learned from U.S.-Based Cancer Surveillance Efforts

Challenges and Opportunities from a Surveillance, Epidemiology, and End Results Registry Perspective

  • Scarlett Lin Gomez, University of California, San Francisco

Challenges and Opportunities from a National Program of Cancer Registries Perspectives

  • Wendy Aldinger, Pennsylvania Cancer Registry
Page 71 Cite
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2025. Enabling 21st Century Applications for Cancer Surveillance Through Enhanced Registries and Beyond: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/28676.
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Challenges and Opportunities from the Curators and Users of Registry Data Perspectives

  • Stephen Schwartz, Fred Hutchinson Cancer Center
  • Jessica Chubak, Kaiser Permanente Washington Health Research Institute (Virtual)
Lessons Learned from International Surveillance and Registries
  • Craig Earle, Canadian Partnership Against Cancer
  • Volker Arndt, German Cancer Research Center (Virtual)
Panel Discussion
Session speakers and:
  • Sarah Greene, Cancer Research Advocate
12:30 pm Break
1:30 pm Session 3: Challenges and Opportunities: Data Collection Methodologies and Technological Advances in Cancer
Co-Moderators:
  • Lawrence Shulman, University of Pennsylvania
  • Peter Paul Yu, Hartford HealthCare Cancer Institute & Memorial Sloan Kettering Cancer Center
Panel Discussion

Introductory Remarks

  • Peter Paul Yu, Hartford HealthCare Cancer Institute & Memorial Sloan Kettering Cancer Center

Flatiron Health Database and Infrastructure

  • Emily Castellanos, Flatiron Health

National Cancer Database

  • Bryan Palis, American College of Surgeons (Virtual)

Reconceptualization of Data Entry and Storage in Electronic Health Records

  • Lawrence Shulman, University of Pennsylvania

Lessons Learned from COVID-19 & Cancer Consortium

  • Jeremy Warner, Brown University
Page 72 Cite
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2025. Enabling 21st Century Applications for Cancer Surveillance Through Enhanced Registries and Beyond: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/28676.
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Centers for Disease Control and Prevention Electronic Pathology Implementation Project

  • Sandy Jones, Centers for Disease Control and Prevention

Common Data Models: CodeX’s Minimal Common Oncology Data Elements

  • Su Chen, MITRE

Data Linkages in Cancer Surveillance Models

  • Elizabeth Shenkman, University of Florida (Virtual)

Interoperable Electronic Health Records in Cancer Surveillance

  • Peter Stetson, Memorial Sloan Kettering Cancer Center (Virtual)

Innovations and Applications of Artificial Intelligence and Large Language Models

  • Peter Clardy, Google Health
Panel Discussion
3:30 pm Break
3:45 pm Session 4: The Infrastructure and Workforce Supporting Cancer Surveillance
Co-Moderators:
  • Bryan Palis, American College of Surgeons (Virtual)
  • Lisa Richardson, Centers for Disease Control and Prevention
National Cancer Registrars Association Perspectives: Cancer Registry Professionals and Their Influence on Cancer Surveillance
  • Nadine Walker, National Cancer Registrars Association
The CAP Cancer Protocols: Harnessing Structured Data to Optimize Cancer Surveillance
  • Samantha Spencer, College of American Pathologists (CAP)
Use of Electronic Health Records and Health Information Exchanges to Streamline Registry Processes
  • Mary Charlton, University of Iowa College of Public Health
Page 73 Cite
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2025. Enabling 21st Century Applications for Cancer Surveillance Through Enhanced Registries and Beyond: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/28676.
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Vision for the 21st Century Cancer Surveillance Workforce
  • Kevin Ward, Rollins School of Public Health, Emory University
Panel Discussion
Session speakers and:
  • Emily Castellanos, Flatiron Health
  • Jackie Gerhart, Epic
5:00 pm Adjourn Day 1

JULY 30, 2024

8:30 am Session 5: Panel Discussion on Policy Opportunities for Advancing Progress
Co-Moderators:
  • Robin Yabroff, American Cancer Society
  • Cathy Bradley, Colorado School of Public Health
Panel Discussion

Policy Opportunities from the Centers for Disease Control and Prevention

  • Sandy Jones, Centers for Disease Control and Prevention

Policy Opportunities from the National Cancer Institute

  • Lynne Penberthy, National Cancer Institute

Policy Opportunities to Support Resource Needs to Conduct High-Quality Cancer Surveillance in the U.S.

  • Micky Tripathi, Office of the National Coordinator for Health Information Technology (Virtual)

How Payment Models Impact Changes in Quality Cancer Care

  • Nancy Keating, Harvard University

Advances in Data Linkages

  • Michaela Dinan, Yale University
Page 74 Cite
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2025. Enabling 21st Century Applications for Cancer Surveillance Through Enhanced Registries and Beyond: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/28676.
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Policy Opportunities from the Vendor Perspective

  • Jackie Gerhart, Epic

Policy Opportunities from Technological Innovations

  • Andrew Hantel, Dana-Farber Cancer Institute and Harvard University

Privacy, Security, and Ethics of Cancer Registry Data

  • Deven McGraw, Ciitizen
  • Aaron Goldenberg, Case Western Reserve University
10:15 am Break
10:30 am Session 6: Improving Cancer Surveillance—Enhanced Registries and Beyond
Co-Moderators:
  • Lisa Richardson, Centers for Disease Control and Prevention
  • Robin Yabroff, American Cancer Society
Panelists:
  • Session 1: Lisa Richardson and Nadia Howlader
  • Session 2: Scarlett Lin Gomez and Larissa Nekhlyudov
  • Session 3: Lawrence Shulman and Peter Paul Yu
  • Session 4: Bryan Palis (Virtual) and Lisa Richardson
  • Session 5: Robin Yabroff and Cathy Bradley
11:30 am Adjourn
Page 69 Cite
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2025. Enabling 21st Century Applications for Cancer Surveillance Through Enhanced Registries and Beyond: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/28676.
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Page 70 Cite
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2025. Enabling 21st Century Applications for Cancer Surveillance Through Enhanced Registries and Beyond: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/28676.
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Page 71 Cite
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2025. Enabling 21st Century Applications for Cancer Surveillance Through Enhanced Registries and Beyond: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/28676.
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Page 72 Cite
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2025. Enabling 21st Century Applications for Cancer Surveillance Through Enhanced Registries and Beyond: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/28676.
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Page 73 Cite
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2025. Enabling 21st Century Applications for Cancer Surveillance Through Enhanced Registries and Beyond: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/28676.
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Page 74 Cite
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2025. Enabling 21st Century Applications for Cancer Surveillance Through Enhanced Registries and Beyond: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/28676.
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