Advancing Face and Hand Transplantation: Principles and Framework for Developing Standardized Protocols (2025)
Chapter: Appendix B: Open Session Agendas
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Appendix A: Biographical Sketches of Committee Members and Staff
Appendix B
Next Chapter: Appendix C: Timeline of Previous Face and Hand Transplantations
Suggested Citation:
"Appendix B: Open Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2025. Advancing Face and Hand Transplantation: Principles and Framework for Developing Standardized Protocols. Washington, DC: The National Academies Press.
doi: 10.17226/28580.
Appendix B
Open Session Agendas
COMMITTEE ON PRINCIPLES AND FRAMEWORK TO GUIDE THE
DEVELOPMENT OF PROTOCOLS AND STANDARD OPERATING
PROCEDURES FOR FACE AND HAND TRANSPLANTS
Meeting 1
JANUARY 31, 2024
Virtual
OPEN SESSION
| 12:15 p.m. | Opening Remarks and Welcome Study Sponsor |
| Kenneth W. Kizer, Committee Chair | |
| 12:20 p.m. | Presentations Relevant to the Committee’s Task |
| Trish Henry and Judi Sgambato, Department of Defense Reconstructive Transplant Research Program | |
| Michael Davis, Vijay Gorantla, and Bohdan Pomahac, CONSORT | |
| 12:40 p.m. | Discussion and Q&A |
| 1:15 p.m. | Adjourn Open Session |
Suggested Citation:
"Appendix B: Open Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2025. Advancing Face and Hand Transplantation: Principles and Framework for Developing Standardized Protocols. Washington, DC: The National Academies Press.
doi: 10.17226/28580.
Webinar 1
MARCH 22, 2024
Virtual
| 10:00 a.m. | Welcome and Goals for the Webinar |
| Kenneth W. Kizer, Committee Chair |
SESSION 1—PATIENT PERSPECTIVES AND LIVED EXPERIENCES
| 10:05 a.m. | Brief Introduction to the Session |
| Marie-Christine Nizzi, Committee Member | |
| 10:10 a.m. | Panelist Remarks |
|
Sheila Advento, bilateral hand transplant recipient |
|
|
Daniel Benner, hand transplant recipient |
|
|
Robert Chelsea, face transplant recipient |
|
|
William Lautzenheiser, bilateral hand transplant recipient |
|
|
Laura Nataf, bilateral hand transplant recipient |
|
|
Carmen Tarleton, face transplant recipient |
|
| 10:40 a.m. | Q&A with Panelists |
| 11:25 a.m. | BREAK |
SESSION 2—INTERNATIONAL PERSPECTIVES ON VCA
| 11:35 a.m. | Panelist Remarks |
|
Fay Bound Alberti, King’s College London, England |
|
|
Martin Iglesias, Angeles del Pedregal Hospital, Mexico |
|
|
Simon Kay, Leeds Teaching Hospitals, England |
|
|
Patrik Lassus, University of Helsinki, Finland |
|
|
Mohit Sharma, Amrita Hospital, Faridabad, India |
|
| 12:25 p.m. | Q&A with Panelists |
| 1:00 p.m. | Closing Remarks and Adjourn |
| Kenneth W. Kizer, Committee Chair |
Suggested Citation:
"Appendix B: Open Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2025. Advancing Face and Hand Transplantation: Principles and Framework for Developing Standardized Protocols. Washington, DC: The National Academies Press.
doi: 10.17226/28580.
Webinar 2
APRIL 17, 2024
Virtual
| 2:00 p.m. | Welcome and Goals for the Webinar |
| Kenneth W. Kizer, Committee Chair |
SESSION 1— VCA OUTCOMES IN THE UNITED STATES
| 2:05 p.m. | Brief Introduction to the Session |
| David Crandell, Committee Member | |
| 2:10 p.m. | Quality of Life and Patient Reported Outcome Measures in Hand Transplant Recipients |
| David Tulsky, University of Delaware | |
| 2:20 p.m. | VCA in Military Populations: Current Impact and Future Implications |
| Scott Tintle, Walter Reed National Military Medical Center | |
| 2:30 p.m. | VCA in Military Populations: Rehabilitation |
| Princess Filippi, Johns Hopkins | |
| 2:40 p.m. | Informed Decision Making and Patient Perceptions of VCA |
| Elisa Gordon, Vanderbilt University Medical Center | |
| 2:50 p.m. | Psychosocial and Ethical Factors That Affect Informed Decision Making About VCA |
| Bruce Gelb, NYU Langone Health | |
| 3:00 p.m. | Q&A with Session Speakers |
| 3:25 p.m. | BREAK |
Suggested Citation:
"Appendix B: Open Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2025. Advancing Face and Hand Transplantation: Principles and Framework for Developing Standardized Protocols. Washington, DC: The National Academies Press.
doi: 10.17226/28580.
SESSION 2—PUBLIC UNDERSTANDING AND THE POLICY ENVIRONMENT OF VCAS
| 3:40 p.m. | Brief Introduction to the Session |
| Laura Siminoff, Committee Member | |
| 3:45 p.m. | Panelist Remarks |
| Alexandra Glazier, New England Donor Services | |
| Rick D. Hasz, Gift of Life Donor Program | |
| James Rodrigue, Beth Israel Deaconess | |
| Heather Gardiner, Temple University | |
| 4:25 p.m. | Q&A with Session Speakers |
| 4:55 p.m. | Closing Remarks and Adjourn |
| Kenneth W. Kizer, Committee Chair |
Webinar 3
MAY 29, 2024
Virtual
| 12:00 p.m. | Welcome and Goals for the Webinar |
| Kenneth W. Kizer, Committee Chair |
SESSION 1—DEVELOPING REGISTRIES AND OTHER TOPICS
| 12:05 p.m. | Brief Introduction to the Session |
| Justin Sacks, Committee Member | |
| 12:10 p.m. | Lessons Learned from the Limb Loss and Preservation Registry |
| Kenton Kaufman, Mayo Clinic | |
| 12:30 p.m. | The Scientific Registry of Transplant Recipients (SRTR) and Implications for VCA Registry |
| Ryutaro Hirose, Surgical Director, SRTR | |
| Jon Snyder, Director, SRTR | |
| 12:50 p.m. | Challenges with VCA Registries |
| Jaimie Shores, Johns Hopkins |
Suggested Citation:
"Appendix B: Open Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2025. Advancing Face and Hand Transplantation: Principles and Framework for Developing Standardized Protocols. Washington, DC: The National Academies Press.
doi: 10.17226/28580.
| 1:10 p.m. | Q&A with Session Speakers |
| 1:40 p.m. | BREAK |
SESSION 2—LESSONS LEARNED FROM OTHER CLINICAL TRIAL NETWORKS AND SURGICAL CLINICAL TRIALS
| 2:00 p.m. | Brief Introduction to the Session |
| Susan Ellenberg, Committee Member | |
| 2:05 p.m. | Challenges in Building Clinical Trial Networks |
| Tiina K. Urv, National Institutes of Health Rare Diseases Clinical Research Network | |
| 2:25 p.m. | Lessons Learned from the Cystic Fibrosis Foundation |
| Erin Tallarico, Cystic Fibrosis Foundation | |
| 2:45 p.m. | The Blood and Marrow Transplant Clinical Trials Network: A Framework for Establishing a Fit for Purpose Clinical Trials Infrastructure |
| Mary M. Horowitz, Medical College of Wisconsin | |
| 3:05 p.m. | Creating an Impactful Surgical Clinical Trial Network: Lessons Learned from the Lung Transplantation Clinical Trial Network (LT-CTN) |
| Scott Palmer, Duke University | |
| 3:25 p.m. | Q&A with Session Speakers |
| 3:55 p.m. | Closing Remarks and Adjourn |
| Kenneth W. Kizer, Committee Chair |
Webinar 4
JUNE 6, 2024
Virtual
| 10:00 a.m. | Welcome and Goals for the Webinar |
| Kenneth W. Kizer, Committee Chair |
Suggested Citation:
"Appendix B: Open Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2025. Advancing Face and Hand Transplantation: Principles and Framework for Developing Standardized Protocols. Washington, DC: The National Academies Press.
doi: 10.17226/28580.
SESSION 1—THE LIVED EXPERIENCE OF FACE AND HAND TRANSPLANT RECIPIENTS AND CAREGIVERS
| 10:05 a.m. | Brief Introduction to the Session |
| Laura Siminoff, Committee Member | |
| 10:10 a.m. | Caregiver/Patient Perspectives: |
|
Joe DiMeo, face and bilateral hand transplant recipient |
|
|
Carrie (Pratt) Kinan, hand transplant recipient caregiver |
|
| 10:20 a.m. | Q&A with Session Speakers |
| 11:15 a.m. | BREAK |
SESSION 2—PSYCHOLOGY AND BIOETHICS IN THE VCA COMMUNITY
| 11:30 a.m. | Brief Introduction to the Session |
| Arthur Caplan, Committee Member | |
| 11:35 a.m. | Psychological Considerations in VCA |
| Patrick J. Smith, UNC Chapel Hill | |
| 11:55 a.m. | Bioethics and Informed Consent in Face and Hand Transplants |
| Laura Kimberly, NYU | |
| 12:15 p.m. | The Ethics of Pediatric VCAs |
| Chris Feudnter, Children’s Hospital of Philadelphia | |
| 12:35 p.m. | Q&A with Session Speakers |
| 12:55 p.m. | Closing Remarks and Adjourn |
| Kenneth W. Kizer, Committee Chair |
Suggested Citation:
"Appendix B: Open Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2025. Advancing Face and Hand Transplantation: Principles and Framework for Developing Standardized Protocols. Washington, DC: The National Academies Press.
doi: 10.17226/28580.
Roundtable Discussion with CONSORT Participants
JUNE 21, 2024
Virtual
| 11:00 a.m. | Opening Remarks and Welcome |
| Kenneth W. Kizer, Committee Chair | |
| 11:05 a.m. |
Comments from CONSORT Face Transplant Network Site Representatives
|
| 11:25 a.m. |
Comments from CONSORT Hand Transplant Network Site Representatives
|
| 12:00 p.m. | Roundtable Discussion with CONSORT Network Sites and Collaborators |
| 1:00 p.m. | Adjourn Open Session |
Discussion with CONSORT
JULY 24, 2024
Virtual
| 1:00 p.m. | Welcome Remarks and Open Session Objectives |
| Kenneth W. Kizer, Committee Chair |
Suggested Citation:
"Appendix B: Open Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2025. Advancing Face and Hand Transplantation: Principles and Framework for Developing Standardized Protocols. Washington, DC: The National Academies Press.
doi: 10.17226/28580.
| 1:05 p.m. | Opening Remarks from CONSORT Leadership |
| Bohdan Pomahac, Yale University | |
| Vijay Gorantla, Wake Forest University | |
| 1:10 p.m. | Discussion and Q&A |
| 2:00 p.m. | Adjourn Open Session |
Suggested Citation:
"Appendix B: Open Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2025. Advancing Face and Hand Transplantation: Principles and Framework for Developing Standardized Protocols. Washington, DC: The National Academies Press.
doi: 10.17226/28580.
Suggested Citation:
"Appendix B: Open Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2025. Advancing Face and Hand Transplantation: Principles and Framework for Developing Standardized Protocols. Washington, DC: The National Academies Press.
doi: 10.17226/28580.
Suggested Citation:
"Appendix B: Open Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2025. Advancing Face and Hand Transplantation: Principles and Framework for Developing Standardized Protocols. Washington, DC: The National Academies Press.
doi: 10.17226/28580.
Suggested Citation:
"Appendix B: Open Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2025. Advancing Face and Hand Transplantation: Principles and Framework for Developing Standardized Protocols. Washington, DC: The National Academies Press.
doi: 10.17226/28580.
Suggested Citation:
"Appendix B: Open Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2025. Advancing Face and Hand Transplantation: Principles and Framework for Developing Standardized Protocols. Washington, DC: The National Academies Press.
doi: 10.17226/28580.
Suggested Citation:
"Appendix B: Open Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2025. Advancing Face and Hand Transplantation: Principles and Framework for Developing Standardized Protocols. Washington, DC: The National Academies Press.
doi: 10.17226/28580.
Suggested Citation:
"Appendix B: Open Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2025. Advancing Face and Hand Transplantation: Principles and Framework for Developing Standardized Protocols. Washington, DC: The National Academies Press.
doi: 10.17226/28580.
Suggested Citation:
"Appendix B: Open Session Agendas." National Academies of Sciences, Engineering, and Medicine. 2025. Advancing Face and Hand Transplantation: Principles and Framework for Developing Standardized Protocols. Washington, DC: The National Academies Press.
doi: 10.17226/28580.
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