Appendix C
Workshop Planning Committee Biographies

Dr. Lusine Poghosyan is Stone Foundation and Elise D. Fish professor of nursing and executive director of the Center for Healthcare Delivery Research & Innovations at Columbia University School of Nursing and professor of health policy and management at Columbia University Mailman School of Public Health. She is an internationally recognized nurse scientist with health services research expertise. She is principal investigator on multiple federal- and foundation-funded (e.g., National Institutes of Health, Agency for Healthcare Research and Quality, Robert Wood Johnson Foundation) research projects, focused on primary care, health care workforce, and quality of care. She utilizes large databases containing records on millions of patients and clinicians. Dr. Poghosyan is a fellow of the American Academy of Nursing and the New York Academy of Medicine. She was past chair of the Primary Care Expert Panel at the American Academy of Nursing and AcademyHealth’s Interdisciplinary Research Group on Nursing Issues Advisory Board. She is a recipient of multiple awards, including the International Nurse Researcher Hall of Fame from Sigma Theta Tau International in 2022. Dr. Poghosyan received her PhD from the University of Pennsylvania, MPH from the American University of Armenia, and BSN from Erebuni Medical College.

Dr. Damira Omurzakovna Ashiralieva is a virologist at the National Scientific-Practical Center of Infection Control (“Preventative Medicine”), a scientific production organization under the Ministry of Health of Kyrgyzstan. Dr. Ashiralieva previously conducted research on the use of polymerase chain reaction to identify infectious diseases and disease resistance in Moscow, Russia. Dr. Ashiralieva’s current responsibilities include detecting problems in the laboratory diagnosis of infectious diseases, including implementation of modern standards of laboratory diagnosis for healthcare-associated infections, and the development of recommendations and standard operating procedures (SOPs) in the field of laboratory diagnosis and biosafety. She established a clinical bacteriological laboratory, and in 2015, implemented requirements from the European Committee on Antimicrobial Susceptibility Testing (EUCAST) and standards of bacteriological urinalysis in Kyrgyzstan. Dr. Ashiralieva is the author of an introductory bacteriology atlas, training curriculums in antibiotic resistance, and SOPs for sample collection, storage, and transportation for new hospital units. In 2020, she received the Presidential Medal for her work combating COVID-19, and in 2016, she was named a Distinguished Physician by the Ministry of Health. In 2022, Dr. Ashiralieva was elected President of the Biosafety Association for Central Asia and the Caucasus. Dr. Ashiralieva received her doctorate in sanitation and hygiene from the Kyrgyz State Medical Institute in 1996, and her doctorate in clinical microbiology from the Institute for Medical Research, National Institutes of Health, Kuala Lumpur, Malaysia, in 2020.

Dr. Sholpan Askarova is head of the Laboratory of Bioengineering and Regenerative Medicine at National Laboratory Astana, Nazarbayev University (Astana, Kazakhstan). Her primary research interests are associated with molecular and cellular mechanisms of

neurodegenerative diseases and aging, including cell signaling pathways and cytotoxic effects of amyloid-beta-peptide implicated in Alzheimer’s disease (AD), genetic and epigenetic factors that may contribute to cognitive impairment and development of AD, and study of the human microbiome as a potential prognostic biomarker of AD. She is also interested in studying the molecular mechanisms of stem cell aging, rejuvenation, and development and improving the methods of cell therapy for the treatment of chronic diseases and tissue regeneration. Dr. Askarova graduated from al-Farabi Kazakh National University with a BS in 1996 and with a MS in 1999. In 2004, she received a PhD in biological sciences. From 2006 to 2011, as a “Bolashak” program scholar, Dr. Askarova joined the University of Missouri to pursue a PhD degree in biological engineering. In 2011, as a visiting researcher at the McGowan Institute for Regenerative Medicine at the University of Pittsburgh, she started her specialization in the field of regenerative medicine.

Dr. Margarita Yulayevna Ishmuratova is professor of the Botany Department and Head of the Research Park of Biotechnology and Eco-Monitoring in the Faculty of Biology and Geography at Buketov Karaganda University (2015-present). She previously served as Vice Dean for Research (2016-2020), Research Associate in the Institute of Phytochemistry (1997-2008), Leading Research Associate and Director of Zhezkazgan botanical garden (2008-2012), and Assistant Professor in the Pharmacology Department and Head of the Science Department (2012-2015). She is also editor-in-chief of the journal Bulletin of the Karaganda University and the Biology, Medicine, and Geography bulletin series, where she draws upon more than 20 years’ research experience in botany and pharmacognosy, plant anatomy and morphology, plant introduction, and floristic research, and participation in state (Science Committee) and international (International Science and Technology Center) grants and programs. She is a member of the Kazakhstan Biodiversity Preservation Association and was a nominee of a state scholarship for talented young researchers in 2004, 2006, and 2008. She was awarded Best High School Teacher by the Ministry of Education and Science of Kazakhstan in 2019. Her education history includes numerous professional development courses, including: Learning and Teaching in Higher Education (Newcastle University, 2016); Mathematic Methods in Ecology and Environmental Management (Czech Technical University, 2017); Teaching Seminar of Britain Council Research Management and Administration (2016); Professional Training at the Institute of Plant Biology and Biotechnology (Almaty) on Techniques of Micro-clonal Reproduction and Cryopreservation (2020); Professional Online Training in Digital Technology in High School Institutions of the European Union; Quality of Education Using Digital Technology at the Institute of International Education (Charles University, 2020); and Professional Development on Modern Botany (Altai State University, 2020).

Dr. Yann Joly is research director of the Centre of Genomics and Policy, full professor in the Faculty of Medicine and Health Sciences in the Department of Human Genetics, and an associate member of the Bioethics Unit and the Law Faculty at McGill. He was named advocatus emeritus by the Quebec Bar in 2012 and fellow of the Canadian Academy of Health Sciences in 2017. Dr. Joly’s research interests lie at the interface of the fields of data sciences, human rights law, and bioethics. He is the current co-chair of the Regulatory and Ethics Work Stream of the Global Alliance for Genomics and Health. He created the world’s first international Genetic Discrimination Observatory (see: https://gdo.global/en/gdo-description) in 2018. The observatory is represented in 25 countries in five world

regions, including China, Kazakhstan, and Ukraine. Dr. Joly has published his findings in more than 200 peer-reviewed articles featured in top legal, ethical and scientific journals. He served as a legal advisor on multiple institutional review boards in the public and private sectors. In 2012, Dr. Joly received the Quebec Bar Award of Merit for his work on data sharing and privacy.

Dr. Faina Linkov is associate professor and chair at Duquesne University, Pittsburgh, Pennsylvania. She is a multidisciplinary researcher with research interests in molecular epidemiology, cancer, prevention, health systems research, global health, scientific communications, and research productivity. She has been active in initiating research work with several groups in Asia, publishing on the public health challenges in Kazakhstan. Dr. Linkov’s work helped to spread the word about the need for endometrial cancer prevention in Central Asia and specifically in Kazakhstan. Pipelle biopsy, a commonly used diagnostic modality in the United States for endometrial cancer detection and control, is rarely practiced in Kazakhstan. Her protocol for investigating various factors impacting the use of pipelle biopsy were shared with cancer researchers at Nazarbayev University in Kazakhstan and became the focus on several recent publications. Dr. Linkov’s research career has been extremely productive, with more than 100 original research publications and reviews. She was named fellow of the American Association for the Advancement of Science in 2020, the first female faculty member to have such distinction at Duquesne University. Her H-index in Google Scholar is 25, indicating a high degree of citation of her work. Dr. Linkov obtained her PhD in epidemiology at the University of Pittsburgh, where she conducted research from 2005 to 2020.

Dr. Jailobek Chokonovich Orozov currently serves as director at A. Duisheev Kyrgyzstan Research Institute of Veterinary Sciences. In 1997, he began his career at the Department of Veterinary Medicine clinic of the Kyrgyzstani Agrarian Academy. In 2001, he worked at the Kyrgyzstan Research Institute of Animal Husbandry, Veterinary Sciences, and Pastures in the Laboratory of Virology and Biotechnology as a junior researcher. In 2009, he worked as a senior researcher at the Laboratory of Virology and Biotechnology of the A. Duisheev Kyrgyzstan Research Institute of Veterinary Sciences, serving as its deputy director from 2017-2019. In 2011, he managed a project entitled Epizootological bio-monitoring of sheep and goat pox in Kyrgyzstan (International Science and Technology Center KR-1867). In 2014, he worked as a lead specialist at the International Educational Center of KNAU. From 2014 to 2017, he worked as a local consultant on education and capacity building at the KNAU Department of Agricultural Projects Implementation of the Kyrgyzstan Ministry of Agriculture, Processing Industry, and Land Reclamation. He entered the K.I. Scryabin Kyrgyz National Agrarian University (KNAU) in 1992 and graduated in 1997. In 2013, he successfully defended his PhD thesis entitled Optimization of the Polymerase Chain Reaction in the Diagnosis of Sheep and Goat Pox, receiving his degree in biological sciences.

Dr. Vasiliki Rahimzadeh is assistant professor with the Center for Medical Ethics and Health Policy at Baylor College of Medicine. She is an active member of the Global Alliance for Genomics and Health, an international standards-setting organization dedicated to global sharing of genomic data, where she contributes to harmonization of responsible data sharing practice and policy in genomics. Dr. Rahimzadeh’s research interests center on the

ethical, legal, and social issues associated with sharing genomic and related health data across international borders and computing environments. Her translational research on the ethics of health data sharing has been recognized nationally and internationally with the Governor General’s Gold Medal, Gordan A. Maclachlan Prize, and the Vanier Canada Graduate Scholarship. In 2019, Dr. Rahimzadeh completed a postdoctoral fellowship at the Stanford Center for Biomedical Ethics with support from an Ethical, Legal, and Social Implications program training grant from the National Human Genome Research Institute. She earned both her MS and PhD in biomedical ethics from McGill University and completed her BS in microbial biology at the University of California, Berkeley.

Dr. Rahimzadeh is an active member of the Global Alliance for Genomics and Health, a standards setting organization dedicated to global sharing of genomic data and has been involved in drafting data sharing policies.

Dr. Krystal Tsosie (Diné/Navajo Nation) is an Indigenous geneticist-bioethicist and assistant professor at Arizona State University in the School of Life Sciences. As an advocate for Indigenous genomic and data sovereignty, she cofounded the first U.S. Indigenous-led biobank, a 501(c)(3) nonprofit research institution called the Native BioData Consortium. Much of her current research centers on ethical engagement with Indigenous communities in precision health and genomic medicine. She also incorporates biostatistics, genetic epidemiology, public health, and computational approaches to health disparities and, increasingly, environmental data science and stewardship. She currently serves on the Government Policy and Advocacy Committee for the American Society of Human Genetics. Dr. Tsosie earned a MA in bioethics for studying genetic controversies in Indigenous communities and a MPH in epidemiology for studying genetic variation related to uterine fibroids. Her PhD in genomics and health disparities focused on critical ethical issues related to Indigenous data sovereignty, data governance models, and Indigenous community perceptions related to genomic data sharing.

Dr. Tsosie accepted a one-time speaker honorarium from Regeneron for serving as a guest speaker at the October 2022 DRIFT (Discovery Research Investigating Founder Population Traits) Symposium to inform the company on improving their interactions with Indigenous communities.

Dr. John Ure is an economist specializing in digital technologies and issues of data governance and sharing. He runs a data sharing research project in Hong Kong. Dr. Ure was professor at the University of East London (UK) before joining the University of Hong Kong in the 1990s, where he was also director of the Telecoms Research Project and author of two books on telecommunications in Asia, as well as many academic papers and on the editorial advisory boards of two major journals. He founded TRPC Pte Ltd in Singapore in 2007, which in 2021 became part of Access Partnership, of which he is director. Dr. Ure has more than 20 years of experience consulting for governments, United Nations (UN) agencies, regional intergovernmental organizations, and the private sector, mostly in Asia. In 2005, he helped the UN Economic and Social Commission for Asia and the Pacific (UNESCAP) create the Asia Pacific Centre for Information and Communications Technology in Incheon, South Korea, and has written modules and taught for the UN Asian and

Pacific Training Center for Information and Communication Technology in several countries. In 2021, he wrote a proposal for a Digital Solutions Centre for UNESCAP and the Government of Kazakhstan. In 2020–2021, Dr. Ure was project manager for the Intermodal Transport Data Sharing Programme in Hong Kong (Data Trust 1.0) in collaboration with the University of Hong Kong. He is currently collaborating with the Hong Kong Polytechnic University Computer Science Department in a scaled-up version (Data Trust 2.0).

Dr. Gautham Venugopalan currently serves as director of international engagement at Gryphon Scientific. His work focuses on building global capacity to address topics such as emerging technology, laboratory biosafety and biosecurity, cybersecurity, and dual-use research risks. He also has strong expertise in data science and science policy and has provided technical leadership to several emerging technology assessments and research efforts to help maximize the benefits of research while minimizing risks. Dr. Venugopalan previously served as a diplomat, working to build research collaborations between U.S. and international scientists and to develop U.S. policies on issues such as data sharing and diversity and equity in science. He has a BS in mechanical engineering from the Rose-Hulman Institute of Technology and a PhD in bioengineering from the University of California, Berkeley and University of California, San Francisco.

Dr. Wei Zheng is professor and director of Vanderbilt Epidemiology Center. He is an experienced principal investigator (PI) with a major research focus on evaluating environmental exposures, lifestyle factors, genetics, and biomarkers for risk of cancer and other chronic diseases. Dr. Zheng has been a PI or joint PI for more than 35 large National Institutes of Health–funded research grants. Over the past 15 years, he has initiated six large international epidemiologic and genetic research consortia as PI, overseeing the harmonization, generation, and/or sharing of data from more than 1.5 million study participants. Dr. Zheng has published more than 1,200 research papers and has been named as a Highly Cited Researcher by Clarivate Analytics. He has served on many professional committees and journal editorial boards. He is an elected member of the American Epidemiology Society and a recipient of the National Cancer Institute MERIT award (2009) and Vietnam Ministry of Health’s Memorabilia Medal (2019), the country’s highest honorable medal to foreign scientists for their contribution to public health. Dr. Zheng received his medical degree from Fudan University Shanghai Medical School and his PhD in epidemiology from the Johns Hopkins University.