Appendix A

Workshop Agenda

Supporting Children with Disabilities: Lessons from the Pandemic
June 13, 14, and 15, 2022

MONDAY, JUNE 13, 2022 [12:00–3:30 PM ET]
Note: All times listed in Eastern Time

Purpose

• Explore promising approaches and innovative strategies employed during the pandemic to address challenges faced by children with disabilities and their families, including access to clinical service and treatment needs, home caregiving, and mental health treatment with an emphasis on underserved/under resourced children and families
• Consider policies and/or practices that might be sustained or implemented beyond the pandemic to support children with disabilities and their families.

12:00–12:20—Welcome and Introduction

Amy Houtrow, Committee Chair

12:20–12:55—Lived Expertise: Children with Disabilities and Caregivers

Emily Cowen, Youth as Self-Advocates; Kids as Self-Advocates

Kasey Hodges, Arkansas Support Network

Roseani Sanchez, Family Voices National

Doris Tellado

Lauren Ware

Moderator: Emily Hotez, Committee Member

12:55–1:40—Panel Presentation: Hospital and Outpatient Settings - Telehealth

Rebecca Shaffer, Cincinnati Children’s Hospital

Tina Smith, University of Florida Health—Jacksonville and Dr. Rita Nathawad, University of Florida, College of Medicine-Jacksonville

Chris Stille, Colorado Children’s Hospital

Alyssa Ware, Family Voices

1:40–1:55—Questions, Answers, Reflections

Moderator: Marc J. Tassé, Committee Member

1:55–2:15 BREAK

2:15–3:00—Panel Presentation: School and Educational Settings

Dr. Angel Fettig, University of Washington, College of Education

Dr. Marcia Montague, Texas A&M University

Dr. Karrie Shogren, Kansas University Center on Developmental Disabilities; Schiefelbusch Life Span Institute; University of Kansas

Dr. Ani Whitmore, Scott, Whitmore & Company

3:00–3:20—Questions, Answers, Reflections

Moderator: Natasha Strassfeld, Committee Member

END OF DAY 1

DAY TWO—TUESDAY, JUNE 14, 2022 [12:00–3:20 PM ET]
Note: All times listed in Eastern Time

12:00–12:05—Welcome and Introduction

Amy Houtrow, Committee Chair

12:05–12:50—Panel Presentation: Home Care Settings

Dr. Carolyn Foster, Northwestern University Feinberg School of Medicine; Children’s Hospital of Chicago

Nichole Goble, Caregiver Action Network

Shasta Kearns Moore, Medical Motherhood

Caprice Knapp, State of North Dakota Medicaid Director

Dr. Rebecca Seltzer, Johns Hopkins University School of Medicine, Berman Institute of Bioethics

12:50–1:05—Questions, Answers, Reflections

Moderator: Chanda Jones, Committee Member

1:05–1:55—Panel Presentation: State and Federal Policy

Dr. Rishi Agrawal, La Rabida Children’s Hospital; Northwestern University

Dr. Helen DuPlessis, Health Management Associates

Dr. Dennis Kuo, University of Buffalo Jacobs School of Medicine and Biomedical Sciences

Dr. Shea Tanis, Kansas University Center on Developmental Disabilities; Schiefelbusch Life Span Institute; University of Kansas

1:55–2:10—Questions, Answers, Reflections

Moderator: Amy Houtrow, Chair

2:10–2:25 BREAK

2:25–3:05—Panel Presentation: Health Equity - Promising Practices

Dr. Molly Fuentes, Seattle Children’s Hospital

Dr. Kristina Lopez, Arizona State University School of Social Work

Dr. Kristin Sohl, University of Missouri- Columbia School of Medicine

Dr. Jean Leclerc Raphael, Baylor College of Medicine

3:05–3:20—Questions, Answers, Reflections

Moderator: Yetta Myrick, Committee Member

END OF DAY 2

DAY THREE—WEDNESDAY, JUNE 15, 2022 [12:00–3:00 PM ET]
Note: All times listed in Eastern Time

12:00–12:30—Welcome and Introduction

Amy Houtrow, Committee Chair

12:30–1:05—Panel Presentation: Public Health/Emergency Planning

Margarita Hunnefield, CIL Jacksonville

Dr. Denise Nunez, UCLA Health Preventive Medicine

Leslie Rogers, Oregon Special Education Council and Universal Healthcare Task Force

Dr. Laura Stough, Texas A&M University

1:05–1:20—Questions, Answers, Reflections

Moderator: Marc J. Tassé, Committee Member

1:20–1:35 BREAK

1:35–2:05—Panel Presentation: Planning for Recovery

Dr. Renee Boynton-Jarrett, Boston Medical Center and Vital Village Community Engagement Network

Dr. Kristen Choi, University of California, Los Angeles School of Nursing

Dr. Ian Ferguson, Yale University School of Medicine

Dr. Maurice Sholas, Sholas Medical Consulting, LLC

2:05–2:30—Questions, Answers, Reflections

Moderator: Natasha Strassfeld, Committee Member

2:30–3:00—Closing Reflections

Moderator: Amy Houtrow, Committee Chair

END OF DAY 3