Welcome from the National Cancer Policy Forum and Board on Mathematical Sciences and Analytics

Robert Winn, University of Illinois at Chicago

Planning Committee Chair

Nicholas Horton, Amherst College

Committee on Applied and Theoretical Statistics

Session 1: Workshop Overview

Moderator: Victoria Seewaldt, City of Hope

The Social Determinants of Health and Their Influence on Cancer Risk and Outcomes

• John Ayanian, University of Michigan
• Chanita Hughes-Halbert, Medical University of South Carolina

Opportunities to Leverage Big Data and Analytic Methods to Promote the Health of Individuals and Communities

• Paul Tang, IBM Watson Health
• David Steiner, Google Health
• Beth Virnig, ResDAC and University of Minnesota

Advancing Health Equity and Fairness in Big Data Applications in Oncology

• Scarlett Lin Gomez, University of California, San Francisco, Helen Diller Family Comprehensive Cancer Center

Panel Discussion

Speakers, plus:

• Gwen Darien, National Patient Advocate Foundation
• Nicole Stern, Association of American Indian Physicians

Session 2: Highlighting Novel Data Sources and Methodologies

Co-Moderators: Rebecca Miksad, Flatiron Health, and Nicholas Horton, Amherst College

Geospatial Mapping

• Marta Jankowska, University of California, San Diego

Opportunities for Real-World Data

• Blythe Adamson, Flatiron Health

Observational Health Data Sciences and Informatics (OHDSI)

• David Madigan, Columbia University

Neighborhood-Level Social Determinants and Cancer Outcomes

• Loretta Erhunmwunsee, City of Hope

Citizen Science and Digital Health Data

• Abby King, Stanford University

Applying Environmental Data in Cancer Research

• Jaime Hart, Harvard T.H. Chan School of Public Health

Regulatory Considerations with Novel Data Sources and Methods

• Sean Khozin, Oncology Center of Excellence, Food and Drug Administration

Session 3: Data Policy and Ethical Considerations

Moderator: Timothy Rebbeck, Dana-Farber Cancer Institute

Ensuring Equity and Representativeness in Oncology Research

• Augusto Ochoa, Stanley S. Scott Cancer Center and Louisiana State University Health Sciences Center New Orleans

Data Security and Patient Privacy Issues with the Use of Big Data Ethical Perspective

• I. Glenn Cohen, Harvard Law School (presenting remotely)

Privacy in the Use of Big Data for Research

• Kristen Rosati, Coppersmith Brockelman, PLC

Technical Algorithmic Perspective

• Osonde Osoba, RAND Corporation

Panel Discussion

Speakers, plus:

• Monica Webb Hooper, Case Comprehensive Cancer Center

Session 4: Priorities and Opportunities for Collaboration and Data Sharing to Promote Health Equity

Moderator: Karen Basen-Engquist, The University of Texas MD Anderson Cancer Center

Statewide Cancer Consortia Efforts: The Washington State Community Cancer Report

• Scott Ramsey, Fred Hutchinson Institute for Cancer Outcomes Research

The Gravity Project: Standardizing Social Determinants of Health Data in Electronic Health Records to Facilitate Interoperability

• Caroline Fichtenberg, Social Interventions Research & Evaluation Network (SIREN) at the University of California, San Francisco (presenting remotely)

Health Care Organizations

• John Steiner, Kaiser Permanente Social Needs Network for Evaluation and Translation

Cancer Centers

• Ken Smith, Huntsman Cancer Institute (presenting remotely)

Opportunities to Leverage and Link Cancer Registry Data with Other Sources

• Lynne Penberthy, National Cancer Institute

Panel Discussion

Speakers, plus:

• John Michael Gaziano, Department of Veterans Affairs’ Million Veteran Program

Session 5: Identifying Research Gaps and Setting a Research Agenda

Moderator: Robin Yabroff, American Cancer Society

Panelists:

• Lisa Richardson, Centers for Disease Control and Prevention
• Eliseo Pérez-Stable, National Institute on Minority Health and Health Disparities
• Tony Kerlavage, National Cancer Institute Center for Biomedical Informatics and Information Technology
• Cara James, Office of Minority Health, Centers for Medicare & Medicaid Services
• Arlene Ash, University of Massachusetts Medical School

• Clifford Hudis, American Society of Clinical Oncology
• Deborah Schrag, Dana-Farber Cancer Institute and JAMA Associate Editor
• Katherine Hempstead, Robert Wood Johnson Foundation
• J. Leonard Lichtenfeld, American Cancer Society

Session 6: Panel Discussion: Participant Recommendations for the Path Forward

Moderator: Stanton Gerson, Case Comprehensive Cancer Center

Panelists:

• Scarlett Lin Gomez, University of California, San Francisco, Helen Diller Family Comprehensive Cancer Center
• Clifford Hudis, American Society of Clinical Oncology
• Osonde Osoba, RAND Corporation
• Deborah Schrag, Dana-Farber Cancer Institute and JAMA Associate Editor
• John Steiner, Kaiser Permanente Social Needs Network for Evaluation and Translation
• Beth Virnig, ResDAC and University of Minnesota
• George Weiner, University of Iowa Holden Comprehensive Cancer Center

Workshop Wrap-Up

Robert Winn, University of Illinois at Chicago