| Chapter | Description of Information |
|---|---|
| 3 | Newborn screening and sickle cell trait (SCT) |
| Communicating results from screening | |
| State-level approaches to screening | |
| Role of genetic counseling | |
| Reproductive decision making | |
| Screening of subpopulations (National Collegiate Athletic Association | |
| athletes; service members) | |
| 4 | SCT health complications |
| Future research needed for SCT | |
| Need for a national approach to SCT | |
| Conclusion 4-4 | |
| Recommendation 4-4 | |
| 5 | Services for individuals living with SCT |
| Sickle Cell Disease Treatment Demonstration Program | |
| 6 | Importance of using appropriate screening test |
| Lack of quality indicators or consensus guidelines for genetic counseling | |
| Need for national reporting guidelines | |
| Committee proposed SCT core measures set | |
| 8 | Relevant federal agencies involved with SCT activities |
| Confusion between diagnoses of SCT and sickle cell disease | |
| Community-based organization services available for individuals living with SCT | |
| Public education and awareness about SCT |
This page intentionally left blank.