Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action (2020)

Chapter: Appendix M: Summary Table of Sickle Cell Trait Discussion in Report

Previous Chapter: Appendix L: Summary Table of Strategic Plan and Blueprint for Sickle Cell Disease Action
Suggested Citation: "Appendix M: Summary Table of Sickle Cell Trait Discussion in Report." National Academies of Sciences, Engineering, and Medicine. 2020. Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action. Washington, DC: The National Academies Press. doi: 10.17226/25632.

Appendix M

Summary Table of Sickle Cell Trait Discussion in Report

Chapter Description of Information
3 Newborn screening and sickle cell trait (SCT)
Communicating results from screening
State-level approaches to screening
Role of genetic counseling
Reproductive decision making
Screening of subpopulations (National Collegiate Athletic Association
athletes; service members)
4 SCT health complications
Future research needed for SCT
Need for a national approach to SCT
Conclusion 4-4
Recommendation 4-4
5 Services for individuals living with SCT
Sickle Cell Disease Treatment Demonstration Program
6 Importance of using appropriate screening test
Lack of quality indicators or consensus guidelines for genetic counseling
Need for national reporting guidelines
Committee proposed SCT core measures set
8 Relevant federal agencies involved with SCT activities
Confusion between diagnoses of SCT and sickle cell disease
Community-based organization services available for individuals living with SCT
Public education and awareness about SCT
Suggested Citation: "Appendix M: Summary Table of Sickle Cell Trait Discussion in Report." National Academies of Sciences, Engineering, and Medicine. 2020. Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action. Washington, DC: The National Academies Press. doi: 10.17226/25632.

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Suggested Citation: "Appendix M: Summary Table of Sickle Cell Trait Discussion in Report." National Academies of Sciences, Engineering, and Medicine. 2020. Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action. Washington, DC: The National Academies Press. doi: 10.17226/25632.
Page 489
Suggested Citation: "Appendix M: Summary Table of Sickle Cell Trait Discussion in Report." National Academies of Sciences, Engineering, and Medicine. 2020. Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action. Washington, DC: The National Academies Press. doi: 10.17226/25632.
Page 490
Next Chapter: Appendix N: Glossary
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